Covid help for those with Rare Disease

The National Organization for Rare Disorders, Inc. (NORD) launched a financial assistance program for rare disease community members impacted by COVID-19. The NORD COVID-19 Critical Relief Program provides up to $1,000 annually to those eligible to support critical, non-medical needs including, but not limited to, utility bills, cellular or internet service, emergency car repairs, and rent and mortgage. To learn more, please visit:

https://rarediseases.org/nord-launches-financial-assistance-program-for-rare-disease-community-members-impacted-by-covid-19/?fbclid=IwAR38i9xQNEsexUTbw8yZx96quer2nxzfx0xrPBWbJ95re61QixLU3TPHD-Y

Compilation of preparedness tips for Special Needs Families

Here are some various blog posts I have written about emergency preparedness.

How to stock up on meds

72 hour kit for medically complex kids

Camping when you need power

What other emergency suggestions do you have?

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