Adult Autism Services in Utah

Here are some resources for Adult Autism Services in Utah.

SSI-once approved, you receive monthly money and medicaid.  Apply at SSA.gov

DSPD- apply at https://dspd.utah.gov/intake-process/

Vocational Rehab (Voc Rehab) - helps find jobs and gain skills to become employed.  Apply at https://jobs.utah.gov/usor/vr

Adult Autism Center at Pingree School - adultautismcenter.org

UVU Autism Center found at https://www.uvu.edu/autism/

Spectrum Academy (Provo) helps adults with Autism https://www.spectrumcharter.org/

University of Utah Autism Spectrum Disorder Clinic   https://healthcare.utah.edu/uni/programs/autism-clinic/

Each university/college and most tech schools have a department for people with disabilities to help you navigate higher education



Utah Facebook Groups for Adults with Autism (Click on each name to take you to the FB page)
Actually Autistic Support-Utah

SLC-UT Adults with Autism Support Group (Meetup)

(Not Adult Specific...but a lot of adults are members) Utah Autism Support



National Facebook Groups for Adults with Autism (Click on each name to take you to the FB page)
Women on the autism spectrum/support group No Drama

Adults on the Autism Spectrum Closed Group

Adults with Autism Emotional Support


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Do you know of additional services for adults with Autism in Utah?  Please let us know!!!!!!!

Therap App for Leonard Consulting for EVV Verification

Congress passed the "21st Century Cures Act" which requires Electronic Visit Verification (EVV).  This is to cut down on Medicaid Fraud.  Jan 1, 2020 is the deadline to have this in place.

Leonard Consulting has chosen to use the Therap App for their EVV.

Leonard Consulting has chosen the simplest was to fulfill this requirement.  We will still be doing paper timesheets and the hours and paychecks will still be based on the paper timesheets.  But in addition, the employee will need to download the app and clock in and clock out.  The app will geotag their location and give a timestamp.  They will use the app both when they clock in and when they clock out.  Employers won't even have a log in.  No one needs to take any pictures like we feared.  Employers will not need to put in any type of password or pin into the app when employees clock in or clock out.  Yes it is a waste of time.  But it will only take a minute.  It will be OK.  We are used to jumping through hoops, AM I RIGHT?!?!?!?!  hahahaha

Go to your Play Store or App Store and download the Therap App.
The App looks like this...

At some point it will ask you if it can access your location...you must say yes.  This only checks their GPS when the App is open.  There is no GPS tracking between clock-in and clock out or when the app is off.

Once you download and open it...it will look like this...

To run through a fake scenario...put in the following info (this is not a real login)

Once you put in the fake log in the screen will look like this...

Click on Scheduling/EVV and the screen will look like this...

(There may be a bunch of Abigails or Alexanders listed here...that means other people are playing with the fake log in today)

Select Self Check-in at the bottom of the screen and it will bring you to this screen...

Select "Individual"...for this fake login the Clients names are Abigail and Alexander.  Choose either one .  (So in a real scenario this is where the Employee would select the Client (your child's) name.)  

After you select a client name, then it will bring you back to this screen, but now it has the client's name selected.

Now select Program and it will bring you to a screen like this...

You will choose Leonard Consulting and it will bring you back to this screen.  But now Leonard can be seen on the screen.

Now select Service and it will bring you to a screen like this...

In this fake example these are not the Utah Service Codes.  But in a real scenario this is where the employee would select the service code they are using.  Such as SL1, RP1, etc...  The numbers in brackets are how many hours per day and per week have been used for this billing code.  It does not tell you how many you have left...only how many have been used.  It will be the totals for all of your employees...not just the one logging in.  It really won't help us as employers, because we don't have a login.  

So to continue with our fake example, select one of the service codes and it will bring you back to this screen.

Select next and it brings you to a map and address listed at the top of where it is geo-tagging the person.  It is OK if the address is off by a bit...it really doesn't matter.  You do not need to try and correct it.  The only reason a person would make a comment is if they forgot to clock in.  Then they would say something like "I started working at 4:00 PM, but forgot to clock in".  Once again...only make a comment if you made a mistake and forgot to clock in.

Select the check mark and it will bring up this screen saying Check-in has been successful.

Click OK and it brings up this screen.  When the person is still clocked in the vertical bar between the time and the client's name will be yellow.  Once they clock out the bar turns green.

To clock out swipe left on the clients name and select check out.

It will being up the map and address again to geotag the person.  The same rules apply...don't worry if it says a different address, it is fine.  And they only make a comment if they forget to clock out.

It brings up 1 last screen showing that check-out has been successful

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For the real log- in all of the clients names, service codes, employee names etc have already been input into the app.  

For the real log-in for your employees, use this...  

Their login will be all lowercase and no spaces:  firstnamelastname

Their initial password will be: 1234

Their provider code will be all uppercase and no spaces:  LCLLC-UT

It will have them choose a new password.

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If the employee forgets to clock in or clock out...have the employee do it as soon as they remember and have them make a comment when it geotags them.  There is an 8 hour window to clock-in and clock-out.  If it is longer than 8 hours that they forgot to clock-in or clock-out you will need to contact Leonard.

When the employee checks in the app automatically puts the logout time as 1 hour later....ignore this.  When the employee actually log out it will put the real log out time.

If your client, program or service is not showing up on the app,  contact Leonard.

Yes, employees can accurately do an overnight shift on the app.  No need to clock out at midnight.  Just have employees clock-in and clock-out at the beginning and end of the shift.

If shifts are longer than 24 hours...Employees will need to check in and out more than once.  Employees can start a new shift before an overnight shift.  AKA:  the app can only handle 18 hours at a time.  So for overnight shifts the employee should plan to log out and back in again when they go to bed and log out and back in again when they wake up.  or whatever other schedule works for them as long as you checkout and back in again before 18 hours is up.

Employees can work multiple shifts in 1 day.  The employee will just clock in and out each time they work.

If employees do RP7 (watching more than 1 child at a time) they will need to do separate check-ins for each client.

If the employee is switching service codes while working the same shift (ie:   they do respite for part of the shift and homemaking for part of the shift) they will have to check out of 1 code and check in to the other code.

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I said that sometimes I have my employee meet me at a different location other than my house to do a shift, they said that is fine.  (They don't care)

I asked what if the shift starts and ends at 2 different locations.  They said that was fine.  (They don't care).

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Normally an employee will just do the app on their own smart phone.  But if they do not have a smart phone they can use your smart phone, or an ipad or tablet or even your computer.

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If the employee needs to log-in/out on the computer 

go to therapservices.net

click "Secure log-in" in the upper right hand corner

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Employees will have 10 chances to get their password correct.

One thing you will want to do is have the employee set up a password recovery.  This is so if they forget their password they can reset it themselves through their email address.  This needs to be set up on the computer (not phone or tablet).  You can set up password recovery after they have made their own log in and password on the app.

Go to therapservices.net

Click "Secure log-in" in the upper right hand corner

Have the employee log-in (they need to already have this set up on their phone)

Scroll down and click "Dashboard"

Select "Settings"

Click "self-password"

To the right of where it says Self-password (in the middle of the screen) you will click "Configure"

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If your phone's GPS locating drops, you may be prompted to go back to the place you started your checkin/checkout.  Do not worry about changing location in any way.  This has to do with the phone's GPS and not you.  Just repeat the steps you were on again.

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Paper timesheets and the app times do not have to match exactly, but glaring difference could result in non-payment.  Do not worry if they are a few minutes different from each other.

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Any entries before Jan 1, 2020 are considered practice and will be ignored

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SNAP Programs/ LDS/ Special Needs Mutual/ Church of Jesus Christ of Latter-Day Saints

Here are the SNAP Programs I know of.  SNAP stands for Special Needs Activity Programs.  These are the Young Women and Young Men/Scout programs for youth with disabilities in the Church of Jesus Christ of Latter-Day Saints. As specified in the church handbook, SNAP Programs do not substitute for ward Young Women and Young Men programs, they supplement them.

Often SNAP programs allow individuals to continue attending even after they would normally age out of typical Young Men and Young Women Programs.  (ie: in my local SNAP Program there are lots of 60 + year olds that attend weekly).

Also at the bottom there are listings for special needs institute classes.  (Please let me know if you know of additional offerings).

Here is the disability section in the Church handbook (section 26).

To see the description of SNAP programs in the handbook, please scroll down in the handbook to 26.1.26.5 I will copy and paste the section at the bottom of this post.

Arizona, Maricopa County
Location:  Chandler, AZ
Name:  Chandler Snap
Day:  Thursdays
Time:  7 PM-8:30 PM
Location:  Please email to find location
Contact:  (email) chandlersnap@gmail.com
Website/FB page: (instagram) chandler_snap
Additional Information:  They follow the Chandler School District School Schedule.  So when school is out, there is no SNAP.

Location:  Gilbert
Name:
Day:  Thursdays
Time:  7 PM-8:30 PM
Location:  Building on t he grounds of the Gilbert Temple (3307 S. Greenfield Rd., Gilbert AZ 85297)
Contact:
Host Stake:  Williams Field Stake
Website/FB page:
Additional Information:  They follow the Higley School District School Schedule.  So when school is out, there is no SNAP.


Idaho, Bonneville County
Location:  Idaho Falls
Name:
Day:  Mondays
Time:  4 PM-5 PM
Location:  2025 Jennie Lee Dr.   Idaho Falls, ID
Contact:
Website/FB page:
Additional Services:  ASL Interpreter provided

Location:  Ammon
Name:
Day:  Mondays
Time:  4 PM-5:30 PM
Location:  4363 E.  17th St.    Ammon, ID
Contact:
Website/FB page:
Additional Services:  ASL Interpreter provided

Utah, Davis County
Location:  Bountiful UT
Name:  South Davis Special Needs Mutual
Day:
Time:
Location:  1300 S. Main St.  Bountiful UT 84010
Contact: 801-298-4691
Website/FB Page:  https://www.facebook.com/SouthDavisSpecialNeedsMutual/

Location:  Clearfield UT
Name:
Day: Thursdays
Time:  7:30 PM
Location:  Church by the Library
Contact:
Website:
Updated: 9/24/19

Location:  Layton, UT
Name:
Day:  Mondays
Time:  4:30 PM
Location:  625 S. 750 E.  Layton, UT
Contact:
Website:
Updated: 9/24/19

Location:  Layton, UT  (I do not know if there are 2 Layton groups or 1?!?!?!)
Name:
Day:
Time:
Location:
Contact:  Jan Best 801-725-1034 janbest23@gmail.com
Website:
Updated: 02/19/2020

Location:  Farmington, UT
Name:
Day:  Mondays
Time:  4:30 PM-5:45 PM
Location:  1282 W. 1875 N., Farmington, UT
Contact:  801-725-5012
Website:
Updated: 9/24/19

Utah, Iron County
Location:  Cedar City, UT
Name:  SNAP, Iron County
Day:  Thursdays
Time: 7 PM
Location: 550 S. 1100 W.  Cedar City UT
Contact: Laurie Vincent 435-590-3042 snapcedarcity@gmail.com
Website/FB Page:  https://www.facebook.com/SNAP-Iron-County-LDS-1615421081858878/
Info updated: 9/23/19

Utah, Salt Lake County
Location:  Draper
Name:
Day: Thursdays
Time:
Location: 11400 South 1300 East, Draper UT
Contact:
Website/FB Page:
Info updated: 02/19/2020

Location:  Sandy?
Name: Sandy SNAP
Day: Thursdays
Time:
Location:
Contact:  801-652-1290
Website/FB Page:  https://www.facebook.com/SpecialNeedsMutual.SouthSandy/
Info updated: 9/23/19

Location:  Cottonwood Heights
Name:
Day:  Thursdays
Time: 7 PM
Location:  Dover Hills Chapel (3625 Dover Hills Dr., Cottonwood Heights UT)
Contact:
Website/FB Page:
Info updated:  9/24/19

Location:  West Valley, UT
Name: Special Needs Mutual
Day:
Time:
Location:
Contact:
Website/FB Page:  https://www.facebook.com/pages/Special-Needs-Mutual/689738714527273
Info updated: 9/23/19

Location:  Riverton, UT
Name:  Riverton Special Needs Mutual
Day:  Thursdays
Time: 7 PM-8:20 PM
Location: 12173 S. 4000 W, Riverton UT
Contact: Racquel Augat 801-209-6251  rockyaugat@gmail.com, Mike West 801-349-8080  michael.west@cerner.com, Ryan Perry 801-541-0539 ryperry@yahoo.com
Website/FB Page:  https://rivertonspecialneedsmutual.blogspot.com/
Info updated: 9/23/19

Location:  Midvale, UT
Name:  Midvale SNAP
Day:  Thursdays
Time:  7 PM
Location: 700 E. 7500 S., Midvale UT
Contact:
Website/FB Page:
Info updated: 09/24/19

Utah, Utah County
Location:  Highland, UT
Name: North Utah County Special Needs Mutual
Day:  Thursdays
Time: 7 PM-8:30 PM
Location: Strasburg Bldg, 10380 N. 6000 W. Highland, UT
Contact: 801-556-7233 cowboydehart@gmail.com
or 801-822-8760 prov1golfer@hotmail.com
or northspecialneedsmutual@gmail.com
Website/FB Page:  http://www.specialneedsmutual.info/
Info updated: 9/23/19

Location:  Orem, UT
Name: SNAP Orem South
Day:  Thursdays
Time:
Location: 1810 W. Springwater Park Dr. Orem UT 84058
Contact:  801-592-4655
Website/FB Page:  https://www.facebook.com/SNAPOremSouth/
Info updated: 9/23/19

Location:  North Orem, UT
Name:  North Orem SNAP
Day:  Thursdays, when the Alpine School District is in session
Time:
Location:
Contact:  oremnorthsnap@gmail.com
Website/FB Page:
Info updated: 11/13/19

Location:  Lehi, UT
Name:  Lake Mountain SNAP
Serving: Lehi, Eagle Mountain, Cedar Fort, Saratoga Springs
Day:  Thursdays
Time: 7 PM-8:30 PM
Location:  1364 W. 1870 N. Lehi UT 84043
Contact:  Brother and Sister Brown 801-995-0767
Website/FB Page:  https://www.facebook.com/LakeMountainSNAPgroup/
Info updated: 9/23/19

Location:  Provo, UT
Name:  Provo SNAP
Day:  Thursdays
Time:  7 PM-8:30 PM
Location:  965 N. Locus Lane, Provo UT 84604
Contact:
Website/FB Page: http://provosnap.blogspot.com/
Info updated:  9/24/19

Location:  American Fork
Name:  American Fork-Lehi East SNAP
Day:  Thursdays
Time: 7-8:30 PM
Location: 949 N. 540 W., American Fork UT
Contact:
FB Page:  https://www.facebook.com/American-Fork-SNAP-2269765719756147/?hc_location=ufi
Website:  https://afsnap.blogspot.com/
Info updated: 9/24/19

Utah, Washington County
Location:  St. George
Name:  Bloomington Hills Special Needs Mutual
Serving:
Day:  Thursdays
Time: 7 PM-8:30 PM
Location:  Fort Pierce Chapel.  750 E. Fort Pierce Dr. St. George UT
Contact:  Judy Corry 435-705-9572  judyluv2travel@yahoo.com
Website/FB Page:
Info Updated: 9/23/19

Utah, Weber County

Location:  South Ogden UT
Name: Special Needs Mutual
Day: Thursdays
Time: 6 PM-8 PM
Location:  4380 Orchard, South Ogden UT 84403
Contact: Stephanie Stephens 801-510-5131
Website/FB Page: NA
Info updated: 9/23/19

Location:  Ogden
Name:
Day:  Thursdays
Time: 7 PM
Location:  113 Childs Ave, Ogden UT
Contact:
Website:
Info updated: 9/24/19

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Special Needs Institute Classes (ages 18-30)

https://saltlakevalleyinstitute.weebly.com/

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Here is the copied and pasted section that talks about SNAP in the church handbook.

Organizing Special Classes, Programs, or Units

Members who have disabilities and special needs are encouraged to attend Sunday meetings in their home wards unless they live in a care facility where Church programs are organized.

When members who have similar disabilities live in a ward, group of wards, stake, or group of stakes, leaders may organize special activity programs or Primary classes for them. Leaders may also organize special Sunday School classes or other classes. These classes or programs supplement a person’s home ward program.

To organize a special class or program on a multistake level, approval is required from the Area Presidency. These leaders appoint an agent stake president to oversee the initial organization and the continuing operation of a class or program for a specified time.

To organize a special class or program on a multiward level, the stake presidency’s approval is required. The stake president assigns an agent bishop to oversee the initial organization and the continuing operation of a class or program for a specified time.

The agent stake president or bishop consults with other participating stake presidents or bishops to establish a policy for financial support for these classes or programs. Parents or caregivers are responsible for transportation.

If a multistake class or program is organized, the president of each participating stake may appoint a high councilor to help coordinate efforts to enroll members who want to participate, provide leaders and teachers, and administer the financial policy established by the agent stake president.

Members who serve in a special class or program are called and set apart by or under the direction of the agent stake president or bishop. These leaders follow normal Church procedures for extending callings and releases. Leaders and teachers of a special class or program share information about members’ activities and accomplishments with leaders of home wards, where permanent records are kept and recognition can be given.

As invited by the agent stake president or bishop, leaders of a special class or program may attend stake or ward leadership meetings. They may also conduct their own meetings to plan the activities of the class or program.

Leaders may contact Seminaries and Institutes of Religion administrators to learn about classes for members with disabilities that can be established within the Church Educational System.

Wards or branches may be created for members who are deaf or hearing impaired. Or a ward may be asked to host a group for those who are deaf or hearing impaired within a specified geographic area. Such wards, branches, or groups help these members participate fully in service and gospel learning. Instructions for organizing these units are provided in Handbook 1, 9.1.4 and 9.1.10.

Members who use sign language, and their families, may choose to have their Church membership records in one of the following places: (1) their home ward, (2) a ward that is designated to host a group for members who are deaf or hearing impaired, or (3) a ward or branch that is organized for members who are deaf or hearing impaired.

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Please let me know if you know of other programs of if corrections need to be made to this list. To see future posts, please follow the link and "LIKE" our Facebook Page here.

Van modification places in Utah

Mobility Solutions
https://www.msiutah.com/
801-566-3199
231 Cottage Ave
Sandy, UT 84070
(Just off 90th S.)

Paraquad
http://www.paraquad.com/
801-487-0111
2572 S. W. Temple
South Salt Lake UT 84115

United Access
https://www.unitedaccess.com
801-849-0369
9082 S. 300 W.
Sandy UT 84070

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Do you know of other van modification places in Utah?  Please comment below.  Please like our FB page to see future posts.   https://www.facebook.com/SupportedInOurTrials/

Modifying a van: A collection of blogposts

Here are the various blogposts I have written about purchasing or modifying a van.

Paying for a wheelchair accessible vehicle
http://supportedinourtrials.blogspot.com/2016/05/paying-for-wheelchair-modified.html

How much does it cost to modify a van for a wheelchair
http://supportedinourtrials.blogspot.com/2018/09/how-much-does-it-cost-to-modify-van-for.html

What to look for in an adapted van/ Van terminology
http://supportedinourtrials.blogspot.com/2018/07/what-to-look-for-in-adapted-van.html

Adding a hitch to your adapted minivan
http://supportedinourtrials.blogspot.com/2018/09/adding-hitch-to-your-adapted-minivan.html

Van modification places in Utah
https://supportedinourtrials.blogspot.com/2019/08/van-modification-places-in-utah.html

Where can I buy or sell a wheelchair van BY OWNER?
https://supportedinourtrials.blogspot.com/2020/02/where-to-sell-or-buy-handicapwheelchair.html

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Do you know of other van modification info that could help other families?  Please comment below.  Please like our FB page to see future posts.   https://www.facebook.com/SupportedInOurTrials/

Organizations that will pay for SAMI (Seizure monitor)

Here are some organizations that will help you pay for SAMI (or other seizure monitoring devices).

Danny Did  https://www.dannydid.org

Chelsea Hutchinson Foundation https://chelseahutchisonfoundation.org/
(They will also help pay for a seizure dog as well as devices)

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Do you know of other organizations that help pay for seizure monitoring devices?  Please comment below.  Please like our FB page to see future posts.   https://www.facebook.com/SupportedInOurTrials/

Donating old AFO's/DAFO's/SMO's/Braces/Orthotics

There are several charities that will take used AFO's/DAFO's/SMO's/Braces/Orthotics/etc.  Here are a few...

Transcend Orthotics
What they accept:  All types of braces are accepted including knee, back, feet, etc.
Who it benefits:  Various charities such as Project H.O.P.E Kids in Equador, Mexico, Nicaragua, and El Salvador.
Website:???
Mail braces to:
Attn:  Mellissa
Transcend Orthotics & Prosthetics
1246 E. Walnut Lawn St.
Springfield MO 65804
(Please write "donation" on the box)

Pediatric Orthotic Specialists
What they accept:  Used braces and shoes (that fit over the donated braces). 
Who it benefits:  Various impoverished areas of the world.
Website:  http://www.ortho4peds.com/recycling.asp
Mail braces to:
G.C. Meyer Inc.
Pediatric Orthotic Specialists
781-A Kenmoor Ave. SE
Grand Rapids MI 49546

Bluegrass Bracing
What they accept:  AFO's and KAFO's
Who it benefits:  Children in Jamaica
Website:  http://bluegrassbracing.com/pediatrics/orthotics-recycling-program/
Mailing address:
Bluegrass Bracing, Inc
1389 W. Main St.
Lexington KY 40508

Kauri Sue Hamilton School
Attention:  PT department
2827 13400 S.
Riverton, UT 84065

The Club Foot Club (Club foot braces only)
What they accept:  Club Foot Braces only
Who it benefits:  Papua New Guinea or Uganda
Website:  https://clubfootclub.org/help/donate-orthotics/
Mailing address:  Mark the box----" A gift of used medical splints of no value"
Used Orthotics for PNG
Mingende Rural Hospital
PO Box 189
Kundiawa, Simbu Province
Papua New Guinea

or

Christian Blind Mission International
Children's Orthopaedic Rehabilitation Project
PO Box 40375
Kampala, Uganda

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Recycling/Reusing Empty Pill Bottles

Here is an organization that you can donate your used pill bottles to.  They are sent to Africa so Dr.'s can distribute medications to patients.  Without the donated pill bottles, patients are sent home with pills wrapped in a piece of paper.

Matthew 25 Ministries is the name of the organization that collects them.  You can find their website here.

Acceptable Pill bottles include the following:

• Prescription or over-the-counter.

Pill Bottles need to be prepared in the following way or they are thrown away:

• Labels removed, leaving no residue or glue.  (Personally for me...if the label comes off easily, then I save the bottle, if it leaves residue behind I do not save the bottle).
• Sorted by color and type.
• Washed in soap and very hot water
• Rinsed and dried thoroughly
• Must have an all plastic lid, lids must be attached to the bottle (do not put lids on before bottle is completely dried)
• Placed in ziploc and labeled "Clean Bottles"

Mail to:
Matthew 25:  Ministries
11060 Kenwood Rd.
Cincinnati, OH 45242


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Medical flights and housing

Medical Flights

Start with Air Care Alliance...they have a list of over 60 medical flight programs and can connect you with the right one.
http://www.aircarealliance.org/

Air Ambulance Worldwide
https://www.airambulanceworldwide.com/medical-flight

Air Charity Network
https://aircharitynetwork.org/

Angel Flight
https://www.angelflight.com/

Angel Flight West
https://www.angelflightwest.org/

Angel Flight Soars
http://www.angelflightsoars.org/

(VETERANS) Angel Flight Veterans
http://www.angelflightveterans.org/

Angel Med Flight
https://www.angelmedflight.com/

Children's Flight of Hope
https://www.childrensflightofhope.org/

Corporate Angel Network
http://www.corpangelnetwork.org/#/home

Global Medical Relief Fund
https://gmrfchildren.org/

Lifeline pilots
https://lifelinepilots.org/

Mercy Medical Angels
https://mercymedical.org/

Miracle Flights
http://miracleflights.org/

PALS-Patient Airlift Services
http://www.palservices.org/

Patient Travel
http://patienttravel.org/

Southwest Medical Transportation
https://www.southwest.com/html/southwest-difference/community-involvement/charities/medical_transportation.html

Housing

Healthcare Hospitality Network
https://www.hhnetwork.org/

(CANCER) Joe's House
https://www.joeshouse.org/

National Association of Hospital Hospitality Houses
http://www.nahhh.org/

Ronald McDonald House
https://www.rmhc.org/

Social Media

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How to pay for a ceiling lift (In Utah)

Please like our FB page to see future posts in your newsfeed.  

So your non-mobile child is getting heavier and your back is taking a toll.  It may be time for a ceiling lift.  A ceiling lift involves a track with a sling hanging from it.  Once the person is positioned in the sling the person can be moved along the track from room to room.

To find a business that installs these just google "Ceiling lift Utah" and you will get some options.  These are usually installed by elevator companies, stair lift companies and sometimes wheelchair van companies.

There are free-standing lifts (not attached to the ceiling) such as Hoyer or Liko, but they usually cannot get the person into the bathtub (the feet of the lift hit the bathtub) and they take up quite a bit of floor space.  There are some free-standing (floor lifts) that can get a person into a bathtub...so make sure to ask for that kind if you are choosing a free-standing lift.

Floor-lift such as Hoyer or Liko

One bad part of ceiling lifts is that they typically have to split the door frame above the door in order to maneuver the person from room to room.  It works, but it looks a little weird.

Lift cuts through door header

Lift cuts through door header

 Here are some options to pay for a ceiling lift (in Utah)

DSPD 
DSPD will pay for home modifications such as bathroom remodel, ramp or lift into the home, ceiling lift, ramp or lift and tie downs for a vehicle.  Ask your Caseworker.  They can apply for one-time funding.  It does take some time to get approved and there are a few hoops, but it will be paid for 100%.

Independent Living Centers
They pay for anything to help the person live independently or stay at home instead of being in a facility.  Each State is required to have Independent Living Centers (they may be called different names).  In Utah each county has one (some serve more than 1 county).  So go to the link and find your county.
https://uilc.org/en/resources/il-centers

Angels Hands
https://angelshands.org

United Healthcare
You do not need to have United Healthcare for your health insurance, but you do need to have health insurance.  They pay for medical expenses not covered, or not fully covered by commercial insurance.  You can get $5,000 annually per child and $10,000 per lifetime per child
https://www.uhccf.org/

Assistive Technology Foundation (Zions Bank Low Interest Loan)
You turn in the application and they help you get a low interest loan through Zion's Bank.  The loan will be 1/2 of prime and the Foundation pays the rest of the interest on the loan.  For loans over 10,000 you can usually get a 5 year term.  It takes about a week for the loan to go through once all of the paperwork has been submitted.  Once the application is complete it is good for 90 days.  You can use the loan more than once over a lifetime.
1-800-524-5152
http://www.uatpat.org
http://uatf.org/financing


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Things to think about when considering options for a lift...
#1) Which rooms of your home does the person want to get to?  ie:  bed, wheelchair, tub, couch
#2)  Does the lift need to lower all the way to the floor (some don't, some do)
#3) Does the lift need to get the person into the tub (most free-standing lifts cannot do this)
#4)  Will the lift fit through your doorways?  (Most free-standing lifts won't fit)
#5) What is the weight limit on the lift?
#6) Is there an emergency power source in case of power outage?
#7)  Would hydrolic (electric) or manual work best for your situation?
#8)  Am I allowed to make changes to the home (do I rent or own, will I be here long-term?)
#9)  Am I OK if the ceiling lift cuts through the door header?


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This is a portable lift that is an alternative to a ceiling lift and a freestanding lift.  It can only get the person from the bed to the wheelchair and back.

Portable lift you could move to a new house.  

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Since the bathtub is the trickiest area to get a lift to work, here are a couple of other bathing/lift options for you

For all of the bathing situations below the caregiver would not need to bend over to put the person into the tub.

Most of them would not work if your child has no torso/head control.

Bathtub lift you can use with a sling

Chair swings out of tub

Person sits on blue disk, swings into tub and slides into place

Person sits on bench and slides bum over into tub

Bath chair slides over tub.  Bathchair can recline farther than pictured.  Does not lower down into the tub.

Pole goes from ceiling to floor and chair swings into tub

This is to wash a person's hair...called a seahorse

Inflatable bathtub

Inflatable hair-basin

Wall Mounted Shower Stretcher--folds out of the way

What's your Self-Love Language

How do you take care of yourself? I think I am a physical touch...I love baths and soft blankets! Which is so weird...because as far as giving/receiving love from others...physical touch is at the VERY VERY bottom for me.

This is from "Blessing Manifesting" on Instagram here.

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How to deal with Stress/Anxiety when you have a child with disabilities

Here are some ways to deal with anxiety/stress ...  At the bottom is a link to a 1 page document you can print with them listed.

Anxiety Plan
1. Notice physical symptoms
2. Acknowledge that this a anxiety attack (see the rock in the field, anxiety is only 1 rock)
3. Tell yourself...
A. This is the body’s normal physical response to fear
B.  Endorphins are released to protect you. They make fight or flight or freeze.
C. Tell yourself...“It will be OK. This will end soon and I will be fine again.”
D. Recognize that all anxiety attacks will end
4. Do the routines below

5-4-3-2-1

• List 5 things you SEE
• 4 things you TOUCH
• 3 things you HEAR
• 2 things you SMELL
• 1 thing you TASTE

Grounding Questions

• Answer the following questions:  Where am I? What is today? What is the date?  What is the month? What is the year? How old am I? What season is it?

Happy place (most relaxing place you can think of)

• Picture yourself there.  Focus on as many details as possible.  What do you see? Hear? Smell? Taste? Feel?

Focus object

• Focus all attention on 1 object.  Consciously note everything about it possible

Distract yourself

• Distract with strong sensory experiences (Cold water, ice, strong taste, loud sound, silly putty)

• Call a friend, organize something, play a game, read a book

Relax your muscles

• Find a comfortable place to sit or lie down
• Close your eyes and focus only on your toes.  Tighten them for a count of 5, then relax

• Next focus on your feet.  Tighten all muscles in your

feet for a count of 5, then relax

• Continue up your body all the way up to your face

Deep breathing

• Put 1 hand on upper chest and 1 hand on diaphragm

(where rib cage meets stomach)

• Breathe slowly in through nose while counting to 5 in mind.  Hand on chest should stay still, while diaphragm should raise with breath.
• Breathe out slowly through nose while counting to 5
• Repeat

Repeating a mantra internally

• Such as “This too shall pass” or “Life Happens”

EFT Tapping
https://www.thetappingsolution.com/what-is-eft-tapping/

• Identify Problem (can also be general anxiety)
• Rate intensity of anxiety right now 0-10
• Create a statement.  Acknowledge problem and follow up with an unconditional affirmation about yourself as a person
• Even though I am feeling _________, I deeply and completely accept myself.
• Tap the meridian points about 5-7 times while saying the phrase 3 times at each point
• Take a deep breath after each meridian
• When done rate anxiety again 0-10
• If higher than 2, can repeat all meridians again if needed.

Crisis Plan (These are numbers for Utah)

EMERGENCY---call 911 or go to the nearest emergency room

TEXT---HOME to 741741 (Can take up to 5 min for responses)

APP---Use the SafeUT app (can chat or make phone call)

PHONE #’s---

Suicide Prevention Hotline (24 hour Crisis Line)

1-800-SUICIDE or 1-800-273-8255

UNI crisis services (24 hour crisis line) 801-587-3000

Warm Line (3 PM-11 PM) 801-587-1055

Weber Human Services (24 hour crisis line) 801-625-3700

Emergency Contacts

Mom phone #

Dad phone #

Other emergency contacts

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Here is the link to a document you can print.
https://docs.google.com/document/d/1lMKnq2wpE0dz0mZ6exhkhzDRBW-X6bnqef4vXGEB0y4/edit?usp=sharing

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