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Wednesday, July 1, 2020

After discovering which states accept out of state applicants I next compared the features of the different features.

Here are some of the features their program compares and I have listed in Green what I feel is a good standard amount (or the best amount I could find).  Things highlighted in BLUE writing are things that are better than average...

Is the account FDIC Insured... yes $250,000
Initial Minimum Contribution... $25
Annual Fee... $11.25 quarterly with electronic bank statements ($45 annually) (California is $37 and Pennsylvania is $42)
Required minimum yearly contribution...$25 (Massachusetts is $0, Ohio is $1)
Fees or restrictions on disbursements...No
Roll over to another Able Acct...yes and $0
Debit Card Cost....$0 if balance is over $250 (Nebraska had $0 with no min balance)
As I started eliminating states, I highlighted them in RED and listed in RED why I eliminated them.  Things highlighted in BLUE writing are things that are better than average.

Alaska
Arkansas
California (Monthly fee for debit Card)
Colorado
Delaware
District of Columbia
Illinois
Iowa
Kansas
Maryland ($50 to roll over, $1.25 monthly debit card fee)
Massachusetts (Not FDIC Insured) No annual fee and no initial minimum, no yearly min contrib.
Michigan (Financial advisor sold plan and fees to disbursements) no yearly min to contrib
Minnesota
Mississippi
Montana
Nebraska ($50 initial minimum deposit).  No debit card fee with no $250 min balance
Nevada
New Jersey
North Carolina
Ohio (loadable prepaid debit,  $50 initial minimum deposit)  $1 annual minimum deposit
Oregon (I am not comparing because I don't which of their 2 programs to look at)
Pennsylvania Yearly fee is $42 per year instead of $45
Rhode Island
Virginia (I am not comparing because I don't which of their 2 programs to look at)
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Able Accounts that accept Out of State Residents

There are many things to consider when setting up an ABLE Account for your child with disabilities.

The first step is to go to the Able National Resource Center Website.

There is a button where you can "compare 3 states" or "compare programs by features".

Utah does not currently have an Able Program (as of 7/1/2020).  So you you have to use a program that is out of state.  But not all states accept people from out of state.

As of 7/1/2020 there were 24 states that accept people from out of state.  Here they are...

Alaska
Arkansas
California
Colorado
Delaware
District of Columbia
Illinois
Iowa
Kansas
Maryland
Massachusetts
Michigan
Minnesota
Mississippi
Montana
Nebraska
Nevada
New Jersey
North Carolina
Ohio
Oregon (they have 2 programs listed...1 says yes to out of state and 1 says no...so I am not sure)
Pennsylvania
Rhode Island
Virginia (they have 2 programs listed...the both say yes to out of state...but I am not sure which 1 you would pick...so I am not sure)
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Monday, May 11, 2020

Swimming pool floats for people who cannot hold their head up


Sprint Aquatics body fit collar $24.50
https://www.sprintaquatics.com/SPRINT-AQUATICS-BODY-FIT-COLLAR/productinfo/707/






Kiefer Senior inflatable swim collar $19
https://www.sprintaquatics.com/SPRINT-AQUATICS-COMFORT-FLOAT/productinfo/683/




Kiefer flotation set $39
https://www.kiefer.com/kiefer-flotation-set






Kiefer adjustable foam collar $40
https://www.kiefer.com/kiefer-adjustable-foam-swim-collar-adult?gclid=CjwKCAjw7-P1BRA2EiwAXoPWA7iBAEZf0fmt-RjZWUksJ9uMvHdxTB9eceQkNXRP0ivWqCf73nVHexoC-RIQAvD_BwE







Theraquatics posture pillow $87 (comes in adult, child, baby sizes)
https://www.theraquatics.com/9307a.html








Theraquatics body sling $111 (posture pillow also pictured)
https://www.theraquatics.com/9875.html








Theraquatics cerebreal pasy float suit $450
https://www.theraquatics.com/thcepaflsu.html







Hi Support upright float

Hi support upright float with toggle float

Theraquatics hi support upright float with seat $132 (can combine with neck pillow or posture pillow or upright toggle float)
https://www.theraquatics.com/hisupport-upright-float-with-seat.html








Theraquatics Cerebral Palsy Square Float $189
https://www.theraquatics.com/cepasqflba.html







Theraquatics Rosie's Collar $200
https://www.theraquatics.com/rosie39s-coll39.html








Theraquatics Aqua Duck Float $80
https://www.theraquatics.com/aqua-duck-float.html







Danmar sectional raft $245
https://www.danmarproducts.com/ecommerce/swim-rings-bu-484.html






Pool Float $99
https://www.frontgate.com/2-22-resort-pool-float/1241358?listIndex=0&offers_sku=163124%20SEB&SourceCode=ZZ51120&intlShippingCtx=US%7CUSD&catargetid=120245420002921314&cadevice=c&gclid=CjwKCAjw7-P1BRA2EiwAXoPWA87XlVyEHEuoY8owPVCgmYsS9F6NgdHAI5a2qpdTEZGy8t5c07f55BoC3ScQAvD_BwE








Life Jacket Adapted starting at $170
https://www.pfd-a.com/


Head Float and stabilization bar $254
https://www.flaghouse.com/Recreation/Water-Sports/Floating-Devices/Head-Float-and-Stabilization-Bar.axd








WaterGear Flotation Collar $69 (Photo taken from a family's review at https://arearrangedlife.com/adapting/to-swim/)
https://www.theraquatics.com/water-gear-water-cell-flotation-collar.html







Theraquatics foam collar $20 (Mikael had this one for Ellie and Ellie hated it)
https://www.theraquatics.com/6001c.html


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Bikes/Bike Trailers for kids with disabilities



Trailers

Wike large special needs bicycle trailer (can purchase additional wheel for the front to use as a stroller)  MIKAEL OWNS THIS ONE

Lightfoot Cycles (can wheel your wheelchair onto the trailer)

DIY turn a regular kids bike trailer into a trailer that you can wheel your wheelchair onto

Bikes with disabled person in front

Special Bikes UK (Person with disabilities in front)

Duet (Person with disabilities in front.  They have a power assisted version or a regular bike)  (You can buy this on many websites, this is just 1 example)   MIKAEL HAS USED THIS ONE AT NAC AND LOVES IT FOR ELLIE

Bucket bikes/Family Cargo Bikes 

(might need to put person in a tumbleform and attach it. )

Madsen bucket bike(has electric or manual versions)

Bunch Family Cargo Bike (has electric or manual versions)

Yuba

Tricycle you ride with the disabled person


Buddy Trike

 Lightfoot Cycles
https://lightfootcycles.com/collections/tandem-recumbent-trikes
Special Bikes UK (Person with disabilities in front)

Tricycle the disabled person rides alone

Rifton

Freedom concepts (has lots of options including pedals roll as you push from behind, can lay on stomach instead of sit up, can use eye to eye headrest if you have no head strength)  MIKAEL IS IMPRESSED WITH THIS ONE...IT HAS LOTS OF SUPPORT OPTIONS

Triaid (many types of trikes)

Amtryke (many types of trikes)
https://www.amtrykestore.org/

 Lightfoot  Cycles
https://lightfootcycles.com
Special Bikes UK (Person with disabilities in front)

Training Wheels

$130 Fat Wheels Adaptive training wheels
https://www.fatwheels.com/


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Do you have any other recommendations?  Please comment below
If you like this list, please consider "LIKING" my FB page https://www.facebook.com/SupportedInOurTrials/

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Tuesday, April 28, 2020

Covid help for those with Rare Disease

The National Organization for Rare Disorders, Inc. (NORD) launched a financial assistance program for rare disease community members impacted by COVID-19. The NORD COVID-19 Critical Relief Program provides up to $1,000 annually to those eligible to support critical, non-medical needs including, but not limited to, utility bills, cellular or internet service, emergency car repairs, and rent and mortgage. To learn more, please visit:

 https://rarediseases.org/nord-launches-financial-assistance-program-for-rare-disease-community-members-impacted-by-covid-19/?fbclid=IwAR38i9xQNEsexUTbw8yZx96quer2nxzfx0xrPBWbJ95re61QixLU3TPHD-Y
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Thursday, April 16, 2020

Compilation of preparedness tips for Special Needs Families

Here are some various blog posts I have written about emergency preparedness.

How to stock up on meds

72 hour kit for medically complex kids

Camping when you need power

What other emergency suggestions do you have?

Please like share and tag our FB page for future posts.
https://www.facebook.com/SupportedInOurTrials/
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Sunday, March 22, 2020

How to prevent the spread of germs


I have a 17.5 YO daughter who has severe disabilities.  A simple cold will land her in ICU with a breathing tube down her throat for a month.  We have been forced to be constantly aware of germs.

Now that the whole nation is being more aware of germs due to the coronovirus, here are my suggestions of how to avoid germs.

This is adapted from another blogpost I wrote called "What to do when your child with multiple disabilities gets sick"

Prevention
-Stay home.  Do not even visit family and friends, even if they are healthy.

-Go out only when absolutely necessary

-Put a sign on your door saying that you want ZERO visitors.  And follow your rule.  Do not even allow family and friends over, even if they are healthy.

-Do not go where you know people are sick (ie:  your sister's kids are sick, don't go visit)

-When anyone comes home from anywhere (school, store, etc...) wash hands or use hand sanitizer IMMEDIATELY.  Have a bottle readily available and kept in the same place somewhere near the door.  Or better yet, have everyone change clothes.  Or better yet, shower and change clothes.

-When you absolutely need to shop, go with a purpose, get in and get out.

-When you are out, use hand sanitizer before getting in your car

-Anything new you bring into the home (cans of food, etc) need to be sanitized

-Assume everything you touch outside of your home (gas pump, food at store, door handles) is contaminated.  Even at your place of work.

-Frequent hand-washing during the day.  Minimum of 20 seconds (Sing Happy Birthday twice)

-Watch a video about the 7 steps of washing your hands

-Wipe all high touch surfaces once a day with lysol wipes...doorknobs, phones, cupboard handles, etc...

-Try hard not to touch your face.

-Wipe the high-touch areas of your home at least once a day (doorways, doorknobs, keyboards, phones, lightswitches)

Once the sickness hits someone in the family
-Separate the sick and healthy people.  At the minimum contain the sick people to 1 room in the house.  Or even better, are there other solutions to separate the sick from the healthy?  Can the healthy people stay in a tent in the yard?  Can the sick person stay in your camping trailer?  etc.  Get creative.


-The sick person is not allowed to wander the house, they MUST stay in 1 room.  

-Healthy people do not enter the location where the sick person is.

-Close the ventilation (Heat/AC vents and cold air returns) in the room where the sick person is.  You can shove towels or things in the registers as well as closing them off.  Open the windows several times a day in the "sick room".

-Dissolve Emergen-C or Airbourne and give  multiple times per day to the rest of the family to boost immune system

-Use bleach in each load of dishes run through dishwasher or use disposable paper products

-Any dishes that need to be washed by hand, wash in soap and water, then soap for a minute in water with bleach, then rinse.

-Wash clothes in hot where possible and dry on High/Hot

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See my other post about Tips to Survive Staying Home

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What other suggestions do you have to prevent the spread of germs?  Please comment below!
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